In recent years, a number of large population-based biobanks - genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy - have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated.
Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores:
the interrelated conditions needed for a biobank to be created and to exist
the rise of the new bio-economy
the redefinition of citizenship accompanying national biobank developments
This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.
In recent years, a number of large population-based biobanks - genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy - have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated.
Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores:
the interrelated conditions needed for a biobank to be created and to exist
the rise of the new bio-economy
the redefinition of citizenship accompanying national biobank developments
This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.
The BiblioGov Project is an effort to expand awareness of the public documents and records of the U.S. Government via print publications. In broadening the public understanding of government and its...
Biobanks ensuring the governance and management of biological resources have become essential entities. The development of biotechnologies, the increased prevalence of biological drugs and the...
International biobank collaborations allow for studies with large number of subjects where generalizability of findings across populations can be investigated, which means establishing quality...
Biobanks, tissue research and the public Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom Julie Kent, Ruud ter Meulen Biobanks and...
This book describes some of the key epidemiological principles, scientific approaches and quality assurance frameworks required to design and conduct biobank studies in various settings. Using...
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